We Won't Be Shaken

Having a new child in the house has been interesting.  When that child has special needs things get even more interesting.  I compare the feeling to that of having a newborn in the house.  You have NO CLUE what you're doing.  You rely on instinct and hope that will be enough to not completely screw up your kid.  You find yourself crying for no reason at random times of the day.  Why?  There is no why.  There is no reason to cry other than just feeling completely weird.  Everything's new.  Everything's unknown.  And because there is no one RIGHT way to do this parenting thing, you're left to experiment and find a method that leads to some resemblance of sanity.

Yeah.  I think that comparison pretty much sums up the past month in our house.  This is hard, y'all. My fellow parents of children with special needs: can I get an "amen"?

We are staring into a void of unknowns.  There are tests, therapies, blood work, and more to cover all of our bases and get some idea of where things stand.  We have no idea how development works from here on out.  There's only so much damage a child can take before things slow down permanently.  It's all a guessing game.  Will she walk?  Probably.  Will she talk?  We hope so.  What will her mental capacity be?  We have no idea.  Will she live a normal life?  Not using the world's definition.  Will she ever live independently?  Not likely.

Maia and children like her daily remind us what REALLY matters in this world.  Things don't matter.  Money doesn't matter.  Perfection doesn't matter.  What matters is people.  Time.  Family. 

You see, God has made my calling clear.  It is to care for the three little people who spend most of their days trying to send me to the looney bin.  To show them daily that I love them regardless of whether they make it to the potty in time, keep their legos out from under my feet, or eat their dinner.  To teach them to love Jesus and people.  I will spend the next several years of my life preparing them to conquer the world.  To make a difference.  To live for Jesus.  But when they no longer need me to dress them and get them out the door in time, there will still be one.

One sweet daughter of God who will need a lifetime of care from her forever family.  One miracle who will give us the blessing and burden of practicing a lifetime of unconditional love.  Even if we are left with a lifetime of therapies and appointments.  If we are met with unexpected tests results that shake our core.  If we are left spending the rest of her life spoon feeding her and changing her diapers - bring it on.  What better opportunity to make up for lost time and prove just how much we love her?  What better opportunity to show her how much God loves her?  What better opportunity to show the world that THESE CHILDREN MATTER?  In light of that, the unknowns are nothing.

This world has nothing for me, this life is not my own.
I know You go before me and I am not alone.
This mountain rises higher, the way seems so unclear.
But I know that You go with me so I will never fear.
I will trust in You.

Whatever will come our way, through fire or pouring rain.
We won't be shaken.  No we won't be shaken.
Whatever tomorrow brings, together we'll rise and sing
That we won't be shaken.  No we won't be shaken.  

- Building 429.